Yesterday (sunday morning) I had to sit in a chair to measure my weight. I now weigh 56 kilos. A week ago I weighed 50 kilos. My belly is twice wat it was and also my legs look like they belong to someone else. Fat ankles and thick thighs. Nothing like my former self. Well, the doctor prescribed diuretics which were added to the IV but they haven’t had effect.
Swallowing is still difficult as is talking. Nancy came in the morning and again with my mom in the afternoon. I had selected a meal but it turned out that I still can’t eat food, mostly because my mouth is sore. I also felt short of breath and anxious.
Eveline from the Zontas came and gave me a Zonta pin, which is very nice and some fig jelly from Italy, and a plant.
Victor came at 6.30 pm. One of the problems I have is an excess of saliva. According to the doctor this is because my mouth is very irritated. I have to spit it out, but this is hard to do when you’re sleeping, which is one of the reasons I haven’t slept much. We asked the doctor about painkillers and he said he could prescribe them if I wanted them, but chances are that I would react badly to them, since I couldn’t bear the tramadol I was given before.
One of the nurses had given me a special mouthwash specifically for oral mucositis. It reduces the pain and irritation by creating a layer of protection. I’ve been using it since then and I think it helps.
After Victor left I went to sleep, which I needed to catch up on. I woke every hour but was still able to get some rest. At 11 I was given a sleeping pill which I took and which helped me sleep through the night.
This morning when I woke up, I had pain in my mouth, but less than other mornings. I drank ice water and noticed the swallowing was less painful. I felt much better than yesterday. I still cough a lot, probably also because the air is super dry here.
I think the strepthroat may be gone (its hard to say) because my throat feels better. The only things that hurt now are my mouth and swallowing. Hopefully the recovery has set in.
The new doctor introduced herself and has told me she will do something about the fluids that I’m retaining. She later explained in the hallway when Victor was here that I have a low red blood cell value which needs to be improved by adding blood. The white blood cell count is slowly increasing. Tomorrow we will hear more, I hope.
Victor is not pleased at all with the way I am treated in this hospital. So he called the oncology nurse this morning who was also surprised to hear about my current state. She will schedule a meeting with my oncologist and us tomorrow.