Not what we had hoped for

The last chemo hit Sheila very hard. Although the CT scan showed that her liver had become a bit smaller, the effects of the chemo were hardly noticeable. It seems that the cancer is growing again. Her oncologist suggested that she would get an other chemo named Taxol as soon as her health permits this treatment. Next tuesday her case will be dicussed with doctors from the Anthonie van Leeuwenhoek Hospital.

Last friday we’ve requested a second opinion by the VUMC. We got already their reply that they will take up contact with her oncologist to request her file.

Last wednesday we thought Sheila would be home this Sunday, but two days ago we were told that it would be probably next Tuesday. Meanwhile, her condition has not been improved considerably. She still suffers severe mucositis, has difficulty with speaking and her body is swollen because of fluid retention. Also the fever has returned and she developed an allergic reaction (rash) on the antibiotics.

So far the bad news. The good news is that her immune system is recovering slowly.

Sheila’s mind is still unbeaten and she is convinced that the love we feel for each other will cure her finally.

10 Replies to “Not what we had hoped for”

  1. Dear Victor, Sheila, you are surely in a difficult part of the road. Be sure that Touria and I are with you in our thoughts and hopes. Let’s get some inspiration from the fact that Sheila’s immune system is recovering. I hope that she will be home on Tuesday, it’s always better to be home than elsewhere, despite the professional care that is given to you in the hospital. I hope that they will proceed quickly in the VUMC, so that you will have your second opinion soon. It’s always good to ask around, personally I encourage it with my patients when they have to make a difficult decision and don’t know what to do despite my advice. I wish you all the best, big hug from Touria and Rienk

  2. The North Carolina Kschinkas are cheering for you loud and clear~~surely you must hear us! Sheila, you especially, and your dear family and friends close by must know our thoughts and prayers. I think each day from today on I will wear pink in your honor to encourage your fight and positive thinking that will beat your illness. We loved you then and we love you now.

  3. Beste Victor en Sheila,

    Ik heb ineens problemen met antwoorden via je je blog, dus stuur je daarom via de mail een bericht.

    Wat erg om te lezen, dat er weinig verbetering is en dat je nog steeds in het ziekenhuis ligt. Ik kan alleen maar met jullie meeleven, voor je duimen en kaarsjes branden, in de hoop dat er toch een omslag moment van verbetering gaat komen.
    Goed dat jullie ook nog een second opinion vragen. Ik heb 12 jaar geleden ook een kuur met Taxol en Carboplatin gehad. Dat is wel een heel zware kuur, met name de Taxol is pure gif! Maar het heeft mij wel 12 jaar verder gebracht!

    Ik wens jullie heel veel sterkte en beterschap!

    Liefs,
    Marianne

  4. We leven met je mee S en V !! Belangrijk en knap dat Sheila mentaal zo goed is; lijkt me van groot belang voor jullie beiden. Houd vol en heel veel sterkte,
    Dick Poerink

  5. Een hele dikke knuffel en een hele dikke omhelzing van ons, wij duimen op herstel en zijn in gedachten bij jullie. Veel liefs vanuit het oosten des lands. Robin en Cristel, Lynn en Jim.

  6. Sheila en Victor, een heel vervelend bericht, maar gelukkig ook nog positieve kanten. Ik weet zeker dat jullie die optimaal gaan benutten. Heel veel beterschap en sterkte!
    Groetjes,
    Henk

  7. Lieve Sheila en Victor,
    Wat een moed en hoop tonen jullie de afgelopen maanden.
    Ik heb net de blogs nog eens opnieuw gelezen, er is zo veel gebeurd, in zo korte tijd!
    Hou vol!
    Liefs Daan en Caroline

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